The Power of Patients
The Swiss healthcare system, worth CHF 84 billion, is financed by health insurance contributions and taxes. In the latest bulletin of the SAMS, Susanne Hochuli, President of the Swiss Patient Organisation (SPO), questions whether this enormous sum is really spent for the benefit of the population.
In the article «The power of the patients» you will learn how the SPO wants to strengthen the patients and build the «fourth power» in the Swiss healthcare system. The SAMS bulletin also contains information about current activities of the Academy and the Swiss Personalized Health Network. It is available in German and French.
SAMS bulletin 4/2019 in French (PDF)
The Swiss Clinical Trial Organisation invites to dialogue
How do patients experience their participation in a clinical study? How are both participants and trial investigators protected against risks during a clinical trial? You can ask such questions on the anniversary website of the Swiss Clinical Trial Organisation (SCTO) which will provide answers in short video clips.
The Swiss Clinical Trial Organisation is celebrating its 10th anniversary and is taking this opportunity to foster dialogue about clinical research. The anniversary project «People. Data. Biosamples. Clinical research – at eye level» offers the opportunity to ask questions related to these topics. Researchers, physicians, patients, authorities, or data managers, will answer them in snappy video portraits starting at the end of January 2020.Visit the website
The recommendations for health-related registries have been updated
Registries that provide reliable data are becoming increasingly important in the health care system and their number is growing. In order to guarantee their quality, the SAMS has joined forces with the ANQ, the FMH, H+ and unimedsuisse to publish recommendations on the development and operation of health-related registers. Recently, the recommendations issued in 2016 were submitted to a practical test and updated.
A group of ten experts mandated by the SAMS under the supervision of Prof. Anne Lübbeke-Wolff (Geneva) looked into ten Swiss registers. Overall, their evaluation showed that the existing recommendations and the checklist are well applicable in practice. Based on the experts' conclusions, the minimum requirements for data quality assurance and data use needed to be adapted. In addition, several criteria in the checklist were clarified. The updated tools are now available in English, French, German and Italian on the ANQ website.
SAMS Expert report in French (PDF)
Personalized medicine: fundamentals for the training of health professionals
Convinced that health professionals should have a common base knowledge of personalized medicine, the SAMS has developed a guide for pregraduate, postgraduate and continuing interprofessional education. The publication was conceived as a reference document presenting the current state of knowledge.
In order to successfully implement the concept of personalized medicine, health professionals need to acquire new skills. With that in mind, the SAMS has set up an interprofessional working group with the aim to compile fundamental knowledge in this area. The online publication is available in French or German and can be downloaded in either full version or as individual chapters.
Full version in French (PDF)
smarter medicine: first recommendations for caregivers
The association «smarter medicine – Choosing Wisely Switzerland» aims to prevent unnecessary medical treatments. The Academic Society for Gerontological Nursing is the first non-medical organization to participate in this initiative. It has published a «Top 5 List» on the care of elderly people.
Unlike the «Top 5 Lists» published so far, these recently published recommendations for gerontological care do not focus on inadequate treatments or over-treatment, but on possible insufficient medical care for patients. A discussion of the five recommendations is desirable wherever elderly people need care. The list is available in French or German.
Top 5 List in French (PDF)
We have restructured the «Ethics» menu
The Central Ethics Committee (CEC) of the SAMS identifies and discusses ethical challenges arising in medicine. The diversity of themes ranges from A for Animal experiments to T for transplantation. They can now be found on our website in alphabetical order.
The pages of the «Ethics» menu are no longer grouped thematically by domain, but classified from A to Z in a list of keywords. We hope you will enjoy discovering or rediscovering the variety of topics covered by the SAMS. Is something missing or are the links not working as they should? Your comments are very welcome: email@example.com.Visit the website
Cochrane Library: Free Access to Scientific Knowledge
Current scientific findings are decisive for good medical practice. For this reason, the SAMS co-finances free access to the Cochrane Library for everyone living in Switzerland. The online library offers systematic reviews on a wide range of issues and allows one to quickly find out about a topic without knowing all the relevant studies.
To promote the Cochrane Library as a high-quality source of information on medical issues, the FMH and the SAMS are launching a joint campaign in the «Bulletin des médecines suisses». Over the coming weeks, the journal will publish a number of ads and articles on how the Cochrane Library works and where its benefits, opportunities and limits lie.Further information
New factsheet about the Swiss Personalized Health Network
The Swiss Personalized Health Network (SPHN) is a national initiative aiming to lay the foundations required to make health-related data accessible for research across the country. The ultimate goal is to promote the development of personalized medicine and health in Switzerland. A newly published SPHN factsheet provides an overview of the vision, the mandate, its key actors and the governance structure.
Since the launch of SPHN in 2017, infrastructures have been analyzed, expanded and coordinated to efficiently manage health data and make them nationally accessible for research, by developing common standards. The initiative has adopted a federative approach by building upon existing data sources and infrastructures. To learn more about the initiative, download the factsheet or visit the SPHN website.
SPHN Fact-Sheet (PDF)
Eleven MD-PhD grants awarded
The national MD-PhD program has awarded eleven grants to young physicians engaged in research to complete a doctorate in natural sciences, public health sciences and clinical research at a Swiss university. The synopsis of grantees gives an overview of the supported projects.
The national MD-PhD expert committee retained 11 young researchers for funding out of the 22 candidates preselected by the local MD-PhD committees. The grants cover the salary of grantees for two to three years. They are sponsored by the Swiss National Science Foundation (SNSF), Swiss Cancer Research (KFS) and the SAMS. The next call for proposals of the National MD-PhD program will be launched in autumn 2019 with submission deadline on 15 December 2019.
Synopsis of grantees (PDF)
Common templates to facilitate data and material exchange
The Swiss Personalized Health Network (SPHN) and Swiss Biobanking Platform (SBP) have worked in close collaboration to deliver Data Transfer and Use Agreement and Material Transfer Agreement templates to facilitate data and material exchange in the context of academic research projects.
In order to be able to exchange data and samples for research projects between institutions, a Data Transfer and Use Agreement (DTUA) and/or Material Transfer Agreement (MTA) are required. As part of a national harmonization effort, SPHN and SBP have, together with Swiss universities, ETH-Domain institutions and University Hospitals, developed common templates for both documents. Details can be found in the newsletter published today.Further information
The annual report 2018 is published online
The SAMS keeps up with the times and publishes its annual report online only. We use the advantages of the internet to link the review with further information and ongoing activities.
Perhaps you will find the commission in which you were involved or the title of your project selected by our experts? We hope you will enjoy discovering or rediscovering the many highlights of 2018. Our report is available in German or French.Visit the website
Young Talents in Clinical Research: Call 2019
With the «Young Talents in Clinical Research» program, the Gottfried and Julia Bangerter-Rhyner Foundation and the SAMS aim at encouraging young medical doctors to venture into clinical research. CHF 1 million is made available for this call with submission deadline set on 30 June 2019.
The program is conceived in two consecutive steps: Young medical doctors can start out in clinical research thanks to a «beginner grant» which guarantees them protected time for research by covering a portion of their salary. Interested grantees can then apply for a «project grant» to consolidate the acquired research skills during the next two years. More information can be found on our website.
Flyer «Young talents in clinical research» (PDF)
KZS Fund call for proposals for young researchers in biomedical ethics
In 2019, the SAMS is providing a total of CHF 250’000.– from the Käthe-Zingg-Schwichtenberg Fund (KZS Fund) to support junior researchers in biomedical ethics who wish to carry out an independent research project with a Seed Grant. The submission deadline is 15 June 2019.
Contributions for 2019 from the KZS Fund are provided to junior researchers aiming at an academic career in biomedical ethics. Up to CHF 50’000.– can be awarded per Seed Grant to explore novel research ideas, to realize a small, independent pilot project or to prepare a project proposal to be submitted to a larger funding agency. Details on the call and procedure for submission can be found on our website.Visit the website
Sustainable development of the health system
The SAMS has issued a new position paper on sustainable development of the health system. It describes eight general measures and contains a roadmap defining specific steps, deadlines and responsibilities.
What is needed in the health system are reforms oriented towards common goals. According to the SAMS, appropriate orientation is offered by the Triple Aim framework, the basic idea of which is to formulate goals from – at the same time – the perspectives of public health, individual medicine and sustainability.
Position paper: Sustainable development of the health system (2019) (PDF)
Recommendations to support young clinical researchers
The SAMS is committed to a good scientific culture and thereby to improving the situation of young researchers. A working group has evaluated the existing instruments for the support of young scientists at university hospitals. The report published today summarizes the recommendations to strengthen and improve the current structures and instruments.
The working group recommends, among other things, the establishment of a web portal offering a direct access to the resources available to young clinical researchers. This portal is to be developed until mid-2020. More information can be found in the recommendations (in German or in French) available on our website.
Nachwuchsförderung in der klinischen Forschung – bestehende Instrumente und Bedarf (PDF)
New recommendations: Ethics training for health professionals
In daily clinical practice, healthcare professionals are often confronted with ethically challenging situations. The recommendations on ethics training for health professionals reflect the SAMS’ commitment to a successful collaboration when dealing with ethical issues in everyday medical practice.
Ethics education is important in two ways: on the one hand, to ensure that ethically sensitive situations are recognized as such in the first place, and on the other hand, to develop appropriate options for action. The SAMS recommendations describe the contents of a solid ethics education and training and offer a uniform basis for all health professionals. The document can be downloaded in German, French, Italian and English and can also be ordered in printed form (d/f) free of charge.
Recommandations: Ethics training for health professionals (2019) (PDF)
Patient, doctor, big data. Who has the power of definition?
At first glance, concepts of health and disease seem to be limited to abstract reflections. Patients and health professionals are, however, tangibly affected. During the workshop «Patient, doctor, big data. Who has the power of definition?», the exchanges were focused on three perspectives on health: health as conceived through scientific data, health as defined by the professionals and health understood as a public good.
Experts from health and science policy discussed whether there’s a need for redefining today's concepts of health and disease to better reflect the age of big data and artificial intelligence. The trilingual workshop report (German, English, French) summarizes the most important results of this day rich in discussions. The brochure can be downloaded; a printed copy can be ordered free of charge.
Patient, doctor, big data. Who has the power of definition? (PDF)
General Consent for Research: the common model for university hospitals is online
The General Consent for Research (GCR) allows persons treated in hospitals to consent to the collection and reuse of their data and samples for future research projects. In 2017, the SAMS and the Swiss Ethics Committees (swissethics) published a first harmonized model of the GCR. In the meantime, the five university hospitals have adopted a common model that is now available online.
The harmonized model of the GCR, published today, was developed under the leadership of unimedsuisse (swiss university medicine) and approved and adopted by the five university hospitals as well as the swissethics Executive Committee. It contains understandable information for patients on the use of their data and the protection of their rights. In addition, with the harmonized model of the GCR, researchers are provided with a standard document for multicentre research projects in Switzerland. Other hospitals are encouraged to use this model. The document is available in German, French, Italian and English on the unimedsuisse website (German page).Visit the website
SPHN strengthens its international collaboration
The Swiss Personalized Health Network (SPHN) contributes to the development, the implementation and the validation of the infrastructure that is required to make health-related data interoperable and shareable across Switzerland. Two years after its launch, SPHN was selected by the Global Alliance for Genomics and Health (GA4GH) to join an international group of leading initiatives in the field of genomics and personalized health.
The Global Alliance for Genomics and Health (GA4GH) is an international, nonprofit alliance formed to accelerate the potential of research and medicine to advance human health. This new collaboration will allow SPHN to align with GA4GH’s global efforts, contributing to the development of international frameworks and standards. The SPHN initiative, however, remains a national initiative designed to facilitate the exchange of data in Switzerland. More information can be found in the newsletter published today.Further information
The KZS Fund supports three projects on «Coercion in medical practice»
The 2018 KZS Fund call for proposals focused on the topic of «Coercion in medical practice». Out of the 27 submitted applications, three were retained for funding.
The SAMS supports research projects in biomedical ethics with resources from the KZS- Fund. In 2018, a total of 250'000 Swiss francs was available to support research projects investigating the topic of «Coercion in medical practice». 27 applications were submitted until the deadline of 15 August 2018. At the end of a careful evaluation process, the KZS Expert Committee selected three projects for funding. The synopsis below (pdf) offers an overview of all supported projects by the KZS Fund.
Synopsis of grantees (PDF)
Cochrane Library answers your questions on health care
With the national licence for the Cochrane Library, health professionals and the Swiss population have free access to a quality and validated source of information on medical issues and health care.
For over 25 years, the Cochrane network has been producing systematic reviews to summarize research findings in the field of medical care. Each review allows you to quickly form an opinion on a specific question, without having to read all related studies. The reviews are regularly updated and reflect the current state of knowledge. Since 2016, the national licence for the Cochrane Library has been funded by the SAMS, the Federal Office of Public Health, as well as university libraries and hospitals. Take the opportunity to visit the Cochrane Library, when a next question related to health or medical care arises.Further information